The aim of the HSE & Genio Dementia Programme (2012 - 2018) was to ensure people with dementia continue to lead self-determined lives at home connected to their family, neighbours and community for as long as possible. The programme involved developing and testing a range of personalised, flexible and responsive supports and services. This work was aligned with government policy and supported by The Atlantic Philanthropies. €4.9m innovation funding was awarded to 13 dementia projects around Ireland in partnership with the Health Service Executive Ireland (HSE) and the Atlantic Philanthropies. 

Intensive Home care Packages

In addition, Genio supported the HSE with the implementation of personalised Intensive Home Care Packages (IHCPs), which included sharing learning from the experience around the country of implementing IHCPs for people with dementia and enhancing the integration of services. Genio was also commissioned to carry out a research study on the implementation and impact of IHCPs for people with dementia. A Home Care Package is a set of services provided by the HSE to help an older person to be cared for in their own home. Services provided through an Intensive Home Care Package are flexible, but might include home support hours, nursing care, physiotherapy, respite care etc. to support the person with dementia’s needs.

Findings

Research from the HSE & Genio Dementia programme shows that personalised, community-based services can help people at all stages of dementia remain in their own community for longer periods and can be more cost-effective than residential long-term care options for most people. Findings also indicate that better outcomes can be achieved by adopting a system-wide response. This means increased co-ordination between community-based and specialised services and/or acute hospitals, as well as involving the wider community.

13 projects supported
  • 9 projects developed community-based supports for people with dementia. Five of these projects focused on supporting people with advanced dementia. This resulted in the development of a community supports model.

  • 3 projects developed integrated care pathways in the acute hospital sector for people with dementia.

  • 1 project developed a series of ten films designed to address fears about memory loss and dementia to to provide practical advice about brain health.
3,299 people provided with individualised supports in the community
  • 1,476 people with dementia

  • 1,823 family carers

Training and support hours
  • 67,473 personalised support hours have been provided.

  • 2,354 hours of training and education have been provided.

  • 11,753 hours of demenia awareness-raising activities have been delivered.

 

Our impact by numbers

 

Filter by programme area
All

260

projects to date

8,476

people have received improved services through the projects we support

30,277

people have received training, capacity building and/or information

€68m

invested in reform

19

institutions and hostels closed and alternative community-based services established

38,573

people have been reached so far

Mental Health

113

projects funded

12

medium/high support mental health community hostels closed to date.

7,576

people reached (1,547 improved services; 6,029 training, capacity building & information)

344

people supported to move to the community

Disability

129

projects funded

7

disability institutions closed and alternative community-based services established

659

people supported to move to the community 

2,165

individuals, families & staff have received information & training through the projects we support.

Homelessness
 

5

regional projects supported to date
(4 in Housing First & 1 Hospital Discharge Programme)



 
 

124

rough sleepers will be supported to
move to their own homes



 
 
Dementia

13

projects

1,476

people with dementia received community-based supports

1,823

carers received support

67,473

personalised support hours provided to people with dementia through the projects we support

Research & Evidence

 

Dementia

Personalised Supports and Care for People with Dementia

Kevin Cullen, Work Research Centre, Dublin; and Fiona Keogh, Centre for Economic and Social Research on Dementia, National University of Ireland, Galway (formerly Genio). 2018
Dementia

Economic Analysis of a Community-based Model for Dementia Care

Prof Eamon O’Shea and Christine Monaghan, National Centre for Social Research on Dementia, NUI Galway 2016
Dementia

Evaluation of the HSE & Genio Dementia Programme – Year Two

Prof Eamon O’Shea and Christine Monaghan, Irish Centre for Social Gerontology, NUI Galway 2015

Specialists in transforming social services

We work with Government and Philanthropy
to support people in leading self-determined lives

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Genio
19-21 Westland Square
Pearse St., Dublin 2, D02 YH27, Ireland
Phone +353 1 707 1700
Email [email protected]