The aim of the HSE & Genio Dementia Programme (2012 - 2018) was to ensure people with dementia continue to lead self-determined lives at home connected to their family, neighbours and community for as long as possible. The programme involved developing and testing a range of personalised, flexible and responsive supports and services. This work was aligned with government policy and supported by The Atlantic Philanthropies. €4.9m innovation funding was awarded to 13 dementia projects around Ireland in partnership with the Health Service Executive Ireland (HSE) and the Atlantic Philanthropies. 

In addition, Genio supported the HSE with the implementation of personalised Intensive Home Care Packages (IHCPs), which included sharing learning from the experience around the country of implementing IHCPs for people with dementia and enhancing the integration of services. Genio was also commissioned to carry out a research study on the implementation and impact of IHCPs for people with dementia. A Home Care Package is a set of services provided by the HSE to help an older person to be cared for in their own home. Services provided through an Intensive Home Care Package are flexible, but might include home support hours, nursing care, physiotherapy, respite care etc. to support the person with dementia’s needs.

Research from the HSE & Genio Dementia programme shows that personalised, community-based services can be an option for everyone regardless of age, type or stage of dementia – once the correct supports are provided for each person. These supports have been shown to help people at all stages of dementia remain in their own community for longer periods and can be more cost-effective than residential long-term care options for most people. Findings from the programme indicate that better outcomes for people with dementia can be best achieved by adopting a system-wide response based on personalised services. This means increased co-ordination between community-based and specialised services and/or acute hospitals, as well as involving the wider community.

13 projects supported
  • 9 projects developed community-based supports for people with dementia. Five of these projects focused on supporting people with advanced dementia. This resulted in the development of a community supports model.

  • 3 projects developed integrated care pathways in the acute hospital sector for people with dementia.

  • 1 project developed a series of ten films designed to address fears about memory loss and dementia to to provide practical advice about brain health.
3,299 people provided with individualised supports in the community
  • 1,476 people with dementia

  • 1,823 family carers

Training and support hours
  • 67,473 personalised support hours have been provided.

  • 2,354 hours of training and education have been provided.

  • 11,753 hours of demenia awareness-raising activities have been delivered.

 

Research & Evidence

 

Dementia

Personalised Supports and Care for People with Dementia

Kevin Cullen, Work Research Centre, Dublin; and Fiona Keogh, Centre for Economic and Social Research on Dementia, National University of Ireland, Galway (formerly Genio). 2018
Dementia

Economic Analysis of a Community-based Model for Dementia Care

Prof Eamon O’Shea and Christine Monaghan, National Centre for Social Research on Dementia, NUI Galway 2016
Dementia

Evaluation of the HSE & Genio Dementia Programme – Year Two

Prof Eamon O’Shea and Christine Monaghan, Irish Centre for Social Gerontology, NUI Galway 2015

Specialists in transforming social services

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Genio
19-21 Westland Square
Pearse St., Dublin 2, D02 YH27, Ireland
Phone +353 1 707 1700
Email [email protected]