Kinsale Community Response to Dementia (K-CORD)
Lead organisation: The Medical Centre, Kinsale
Grant amount: €630,000
Description: This project will establish a comprehensive community-based, person-centred response to dementia, by engaging concerned professionals and local citizens in a process of collaborative learning, planning and action. It will lead to the optimisation of supports, services and facilities for people with dementia and their carers.
“A person with dementia needs to be at the centre of the decision-making (about their own life) and a circle of support needs to be built around that person. As the disease progresses and it comes to the point in time where the person with dementia loses control over their own autonomy, it becomes a much more primary role for the primary carer. This is daunting and heart-breaking and therefore that circle will have to surround the primary carer as well.”
Anne Twomey, former carer and member of the Management Committee of the 'Kinsale Community Response to Dementia' (K-CORD) project
The 5 Steps to living well with Dementia in South Tipperary
Lead Organisation: South Tipperary Mental Health Service
Grant amount: €700,000
Description: This dementia project will transform the life experience of people with dementia and their families by increasing public awareness, dispelling myths, reducing stigma and encouraging people to come forward earlier for diagnosis and treatment.
“I’m about four to five years into it (dementia). I’m fairly alright; I forget things, which is normal. I live as best I can. The only thing that frightens me is the (reaction from the) community; if you tell them you have alzheimers they nearly go the other direction. I think people kind of say ‘she has alzheimers, she’ll be talking stupid’. So to me what’s needed is more and more people going out and talking about it.“
Marie Ryan, housewife, former dental nurse and member of the ‘5 steps to living with Dementia in South Tipperary’ consortium
“Looking after somebody with Alzheimer’s can be very rewarding. Just to hold my mother’s hand and when I say something to her and she squeezes my hand, I know she knows what I’m saying. An odd smile, the nod of her head, just the recognition, I would miss all that if she was in a nursing home. “
Helen Jenkins, full-time carer for her mother and member of the ‘5 steps to living with Dementia in South Tipperary’ consortium
Community Action on Dementia in Mayo
Lead organisation: Alzheimer Society of Ireland
Grant amount: €700,000
Description: The project aims to provide a system of service provision for people with dementia in Mayo that is person-centred and based within the person's own community. The project also aims to develop within Mayo dementia-friendly communities where the individual's wider community are aware of their diagnosis and equipped to offer support.
“People imagine that once a person is diagnosed with dementia that they lose all their faculties very fast but that isn’t the case. They may need help or a safe environment in which to carry on their daily lives but they can still live quite an enjoyable life. The fact that the projects that are being planned here are community-based projects means that the community is becoming more dementia friendly and that can only make life easier for people.”
Mary Bourke, carer and member of the 'Community Action on Dementia in Mayo' consortium
Living Well with Dementia (LWwD)
Lead Organisation: HSE Dublin Mid-Leinster
Grant amount: €700,000
Description: This is a community based dementia project that builds on the foundations of circles of support - family, neighbours, community groups. The project aim is that people with dementia and their carers live in a community which accepts, supports and empowers them as they travel the dementia journey, served by a comprehensive set of easily accessible, visible, personalised interlinked supports.
"People have strange perceptions to the name dementia; people are like "What’s wrong with you? You don’t look sick"
Dermot Slevin, person with dementia and member of the 'Living Well with Dementia' (LWwD) consortium
"Family involvement is paramount; I think the more the family is involved and knows about what is happening the easier it is for everybody. This helps the family because it’s so much easier than hearing about it second hand or even third hand.”
Miriam Whelan, carer and member of the 'Living Well with Dementia' (LWwD) consortium